Roger Watson, Editor
The aim of this study from Iran was to: 'explain the perception of patients with chronic hepatitis B regarding problems in the Iranian society.' Twenty-seven patients with chronic hepatitis B in Iran were interviewed and seven themes were identified: insufficient self-care, misperceptions, stigmatization, psychological consequences, failure, spiritual struggle and post-traumatic growth.
Money was an issue in being followed up as one of woman said: “My husband and I are infected with the disease in a way that I check my tests every 6 months and my husband every 3 months, but honestly, we do not refer frequently since the costs of the tests are extremely high. Actually, this is a great concern in our family, which prevents any further follow-up action.” Stigmatization and rejection were also issues, as one person said: “People’s view about the disease is so unpleasant. In offices, if colleagues know about the disease of an employee, they misbehave with the infected person.” Yet others took extreme measures to prevent spread as one woman explained: “I’m told that my disease could be transmitted through blood, but I take care of myself at home so that my children and husband could be safe from the disease. Even during cooking, I wear multi-layered gloves and never cook without gloves.”
The authors concluded: 'People suffering from hepatitis B live with their family and interact with people and the society. These people have different healthcare needs throughout various stages of life, such as in adolescence, married life, pregnancy, etc. Hence, it seems necessary to educate patients visiting Medicare centers using effective means throughout the life stages, as well as to provide nursing care without labeling. In turn, this will help patients adjust better to the chronic condition and will improve their quality of life.'
Ezbarami ZT, Hassani P, Tafreshi MZ, Majd HA (2017) A qualitative study on individual experiences of chronic B patients Nursing Open DOI: 10.1002/nop2.100